Celebrating the Good Days: My Journey with Chronic Illness

Some days are better than others, but I always celebrate the good days! After being diagnosed with my first disease, Ulcerative Colitis, in January 2022—right before my 40th birthday—I thought I could take it on like I do everything else. I believed that as soon as I gained control of the disease and figured out how to eat right, I could live a somewhat normal life. So, I agreed to take the harsh biological medications and changed my diet. This worked for a short time.

The Unraveling

Next thing I knew, I was diagnosed with rheumatoid arthritis (RA), psoriatic arthritis, a stroke, and finally, a rare blood cancer. All of this proved to be overwhelming. What was I going to do now?

Those of us with chronic illnesses often feel an overwhelming pressure to let our friends and loved ones think we are okay. Inside, we are struggling. Our anxiety runs high because we can't figure out how to fix it. We are scared to call the doctor for the millionth time because we feel like a burden. Our depression keeps us from following up on small tasks. After managing to get through the day, we are exhausted.

The Weight of Isolation

I am an extrovert, but over the last three years, I have felt myself moving more inward. It’s easier to hide the pain and exhaustion from others. However, that seclusion only added to my depression and made my journey feel even lonelier.

I am lucky enough to have an amazing support system that continues to help me stay positive. They encourage me to keep living my dreams, even through this crazy life of chronic illness.

Finding Strength in Community

I want to share my journey in hopes that I can help others push through the hard days so they can enjoy the good ones. It’s important to remember that we are not alone in this fight. There are countless individuals facing similar challenges.

Connecting with others who understand can be incredibly healing. Sharing experiences, advice, and even just a listening ear can make a world of difference. I encourage you to reach out, whether it’s through online forums, support groups, or social media.

Embracing Vulnerability

Being vulnerable is tough, but it can also be liberating. When we open up about our struggles, we allow others to do the same. It creates a safe space for honesty and support. I’ve learned that it’s okay to not be okay. It’s okay to ask for help.

The Journey Ahead

As I navigate this journey, I remind myself that it’s okay to celebrate the small victories. Whether it’s a good day or simply getting out of bed, each step forward is worth acknowledging.

I encourage you to find your own ways to celebrate. Maybe it’s treating yourself to a favorite meal, enjoying a sunny day outside, or simply taking a moment to breathe and reflect.

Conclusion

Life with chronic illness is a rollercoaster of emotions. There are ups and downs, but through it all, we can find joy in the little things. Let’s support one another and continue to share our stories. Together, we can create a community that lifts each other up.

Remember, you are not alone. We are in this together, and there is strength in our shared experiences. Let’s dare to fly, even when the winds are against us!

---wix---